MY “LUCKY” STROKE
by Catherine Schuller, AICI, CIP
DIVABETIC IMAGE AND STYLE DIRECTOR
Sudden and unexpected and potentially fatal. That’s how I describe it. If anyone would have told me that sometime during the year 2009’s end I, Catherine Schuller, was going to have a stroke, I would have said, “Unlikely!” But, that is exactly what happened. Let me say that I had absolutely no prior symptoms, no shortness of breath, chest pains, heart palpitations, enlarged left side of my heart, susceptibility to pneumonia or bronchitis.
I just lost 40 pounds, am controlling my prediabetes and insulin resistance, monitored every six months at my endocrinologist, who listens regularly to my heart and monitors my now-perfect blood pressure. However, it seems as though I was a ticking time bomb waiting to “go off.” So, on Saturday, November 14th at 8 a.m., World Diabetes Awareness Day, while I was packing up the car going to execute my duties as Image and Style Director for my Divabetic makeover event, with a full day ahead of me doing two fashion shows and hosting The Glam More Fear Less makeover station, I became one of the 800,000 people in America who experiences a stroke.
The only reason I am able to write this article today is because I recognized the symptoms and acted quickly on them. As someone who knows strokes because of my work with diabetes, I recognized what was happening to me, had my husband, who was assisting me at the time, call 9-1-1 and got myself to the emergency room. They acted quickly, stripping me of my leather jacket, jewelry, bustier and boots in two minutes and started the necessary procedures to diagnosis, determine the brain damage and hopefully arrest the stroke. The ER gave me the immediate treatment for stroke, tPA (tissue plasminogen activator) – the ‘clot busting’ drug, which if administered within the required three hour window, halts the stroke and reverses the possible physically disabling consequences. Many Americans, especially women, are not aware that stroke is the leading cause of disability and the third leading cause of death. The odds are 30% higher that women will have longer times before diagnosed. Perhaps because symptoms such as altered mental state, slurred speech and even unconsciousness are not just associated with strokes or because they ignore them and don’t get the help they need quickly. I was lucky because just my right side was rendered immobile but my speech, level of awareness and lack of confusion were in my favor allowing me to ask for help and tell my husband, “Call 9-1-1 and tell them I am having a stroke!”
Getting people informed is my new mission, so I am officially on my soapbox and itching to get this information out there. It saved my life and I am literally the walking, talking example of how a little ‘knowledge is power.’
As it turns out, there are two kinds of stroke (or “brain attack”) and you need to be able to recognize the warning signs. Suffice it to say that a blood clot blocks an artery (a blood vessel that carries blood from the heart to the body) or a blood vessel (a tube through which the blood moves through the body) breaks, interrupting blood flow to an area of the brain. When either of these things happen, brain cells begin to die and brain damage occurs. If you act swiftly and get to the hospital and have them administer that tPA, the prognosis is 80% in favor that you will recover.
You cannot ignore what is happening to you in hopes that the symptoms will simply pass. I’m wagging my finger here. In the words of another Divabetic makeover station title, “Denial is not my style.” One of the things the ER does is not only diagnose and arrest the stroke, but determine how and why the stroke occurred so that they can prevent another one in the future. In my case, the diagnostic tests determined that I have a patent foramen ovale, (hole in my heart) which I’ve had since birth. And to make matters even more interesting, I have an ASD (atrial septic defect), a flap between the upper chambers which did not close at birth. The hospital delved deeper and had me sign (privacy reasons) for DNA testing on my blood to see if I have any clotting factors which I am also genetically predisposed to, and the results came back that I have the Factor Five Leiten gene – a triple whammy! So, between the hole, the flap and the clot, I was a trifecta ticking time bomb! I guess you might say I won the “clottery” and there were no symptoms until my right leg crumbled beneath me and took me down. It wasn’t painful but I was devastatingly startled as I fell. I remember thinking “Why am I falling - I did not trip over anything!!”
In a nutshell, the foramen ovale is a small hole in the atrial septum of the heart that is used to speedup the travel of oxygenated blood from the placenta through the umbilical cord to a fetus in the womb. In most cases the hole closes naturally when a newborn takes its first breath. However, 25 percent of the population never experiences this closure, a defect that works like a flap valve and opens under conditions when there is more-than-usual pressure inside the chest. If the pressure is great enough, blood may travel from the right atrium to the left. If there is a clot in that blood, it can cross the PFO, enter the left atrium and travel out of the heart and to the brain (causing a stroke) or into a coronary artery (causing a heart attack). See, how it’s just a luck of the draw where the clot lodges? It took out my right side and left me partially, and thankfully, somewhat immobile. But, it could have severely taken out my speech, disfigured my face or any number of other physical inconveniences involving speech, movement, and memory.
The treatment will be anti-coagulant blood thinners and a miraculous procedure that involves a catheter insertion into the femoral artery in the groin and an ingenious springy stainless steel umbrella that collapses in the tube as they shoot it up the catheter and into the heart where it blocks the holes. Cells grow over the device in a few months. I was amazed as my doctor described this procedure which is done in a few hours on an outpatient basis! Right now I am awaiting a pediatric cardiologist who will assist my regular cardiologist. He does this kind of operation on babies all the time. Makes sense to me!
Looks like it was my “lucky stroke” in more ways than one. I wasn’t flying, I wasn’t driving, I wasn’t coming down the stairs, I wasn’t sleeping, I wasn’t out of town….no, all things considered, I was with my husband just around the corner from the BEST hospital – New York Presbyterian Hospital – and I was given the absolutely most wonderful care. (Don’t know what my story would be if I didn’t have health insurance, but that’s ANOTHER discussion.) Ten days after my stroke I took my first real steps – held up by two amazing physical therapists and a walker. Later I was in a wheelchair and then a walker with supervision. But I used the health, strength and determination to come back quickly. And it was quite fitting that my first steps were on Thanksgiving Day – I had a LOT to be thankful for.
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If you want to read my story, there is a wonderful site called www.caringbridge.com. It is a social network for the hospitalized who cannot get to their cell phones and email to let the world know what has happened to them. The website is “catherineschuller” (all one word) and my password is “divastyle.” Here are the warning signs and a little mnemonic device to help you remember them.
ACT F.A.S.T.
| FACE |
ASK THE PERSON TO SMILE. DOES ONE SIDE OF THE FACE DROOP? |
| ARMS |
ASK THE PERSON TO RAISE BOTH ARMS. DOES ONE ARM DRIFT DOWNWARD? |
| SPEECH |
ASK THE PERSON TO REPEAT A SIMPLE SENTENCE. ARE WORDS SLURRED? CAN THEY REPEAT THE SENTENCE CORRECTLY? REMEMBER DETAILS LIKE THEIR NAME AND WHERE THEY ARE? |
| TIME |
IF THE PERSON SHOWS ANY OF THESE SYMPTOMS, SEEK IMMEDIATE MEDICAL ATTENTION BECAUSE TIME IS IMPORTANT (THREE HOUR WINDOW) |
My “lucky” stroke could also be yours or someone you know if you heed these and act swiftly. As much as I wouldn’t wish a month’s hospital stay on anyone, it gave me pause for reflection and a renewed perspective on life. If you are reading this and among those who prayed for my recovery or held me in your thoughts and wishes, thank you for letting me know how much you cared about my restoration and return to my active, normal life. Small pleasures in life that I will never take for granted again include: sleeping on your side, showering, washing your hair, using the bathroom instead of a bedpan, wiggling your toes and WALKING down the street! I am happy to report I am “off my walker” and in rehab once a week and looking forward to 2010 as I write this. Stay tuned for my continuing saga as I need to go back in for heart surgery to close the PFO and ASD which should be a few hour procedure on an outpatient basis. Modern medicine rocks!

Catherine lying in hospital bed with immobile right leg